Leave Your Mark
Extend a Hand for Something Positive.
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The 2nd Annual
Jayhawk Cup Alumni Soccer Tournament - 2023!
Making Our Mark in Orlando
Marybeth and Luke,
Thank you so much for your generous support of the Kids Get Scleroderma, Too! Conference this weekend.
I just got home last night and have been basking in the glow of our time together in Orlando. Part of the success of the Conference this year was your support, enthusiasm and engagement on-site.
I am so grateful for your partnership this weekend and all year round. As you know, our philanthropy program is structured to facilitate mutually beneficial partnerships, and I hope you have found that to be true in your time working with us. I am so grateful to A Lasting Mark for embracing this philosophy wholeheartedly and approaching our partnership with open arms and open minds with our community at mind – and in heart. Thanks to your efforts, we have more hope than ever for a bright future for those living with scleroderma.
Your family is BEAUTIFUL and your philanthropic spirit is truly inspirational!
Thank you again for your support of our scleroderma community, and I would love your feedback on what we can do better going forward.
Best,
Mary J. Wheatley, IOM, CAE Chief Executive Officer - National Scleroderma Foundation
A MESSAGE FROM A LASTING MARK
We would like to congratulate the National Scleroderma Foundation on their 25th Anniversary. A Lasting Mark has been proud to work in collaboration with the National Scleroderma Foundation, for the past 10 years, specifically in raising monies and awareness that children get Scleroderma too! We look forward to continuing this mission and helping to improve the quality of life of all children affected by this disease. Together we are making a difference, we are leaving our Mark.
What is Pediatric Scleroderma?
Scleroderma is a rare rheumatic autoimmune disease that affects connective tissue and vascular system. It produces excessive collagen that causes scarring and hardening of the skin (localized) or in internal organs (systemic). The result can be disfigurement and disability, for some it is life threatening. The cause is unknown and there is no cure. Scleroderma is thought to be an adult disease. There are 5,000-7,000 children with Scleroderma in the United States.
Our Mission
ALM’s purpose is to increase awareness about Pediatric Scleroderma. When diseases are so rare and so few are affected, they are often underfunded. We aim to raise money for research, treatments, and an eventual cure. In addition, we want to improve the day-to-day lives of those children affected. We want to provide emotional support for them and their families. We are proud supporters of the National Scleroderma Foundation, specifically in funding services for their pediatric community.
Learn about ways to give, support Linear Scleroderma, and help to Luke’s efforts to search for a cure.
A Lasting Mark & London Jewelers
Our limited edition bracelet collaboration with London Jewelers symbolizes how we all have the power to leave our mark, our fingerprint, and touch someone else’s life.
